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BBD Longitudinal Study of Osteogenesis Imperfecta Open


The overall goal of this study is to answer specific questions about the natural history of brittle bone diseases as defined by molecular etiology and to develop the foundation for prospective clinical studies.

Study Details
Internal Title: 22-091 - Longitudinal OI

PCH IRB Number: S-IRB-22-091
Clinical Trials Government Identifier: NCT02432625

Diagnoses & Treatments: Osteogenesis Imperfecta, OI, Brittle Bone Disease

Study Type: Other

Eligibility: Individuals with OI diagnosed by molecular (DNA) analysis OR Individuals whose clinical history and radiographs are highly suggestive of OI, but whose diagnosis has not been verified by biochemical or molecular studies

Enrollment Status: Open

Phase: Other


Coordinator Contact: ISABELLA WHEELER
Contact Email:


Principal Investigator

Principal Investigator Photo
Medical Director, Metabolic Bone and Osteogenesis Imperfecta (OI) Clinic